Friday, November 20, 2009

Back on track

I'm pleased to say I'm back on track with my walking, (my confidence is building...phew!) even though when I'm standing I still have a burning sensation under my right foot and up the calf muscle. The muscle has grown in strength and so its quite tight, but the more I stand on it and Shiviani helps me to stretch it gets better. Today I started with an Occupational Therapist, she is new here. She just did an assessment on me today and on Monday will be working on my hands and arms, so I'm looking forward to adding something new each day ontop of the 2 physio sessions. I'm actually starting to feel (now don't get excited just yet!) some changes in my right shoulder. When I travel I use a manual wheelchair which doesn't have arms. After a while both shoulders ach because my arms almost hang out of the shoulder socket and this is uncomfortable. I'm noticing this time that as I sit I'm not getting that same aching feeling. Also in physio when I'm standing I'm doing arm exercises where I raise my arm outwards and it is rising up a bit higher and not quivering so much, which is good as it gives me something to work with. The changes that take place will just be 'bit by bit' and I find that in itself a challenge.
I've been talking to the other patients and its been a great emotional support, especially how they cope when they return home after treatment and they go through the highs and lows just like me. As I described it, I'm just like a duck, smooth sailing on top but I'm paddling like shit underneath just to keep a float!!
I've just had an IV of stem cells so I'm waiting for the affects to kick in, mum is down stairs in the common room playing a game with sabine and lunch will be here soon. Sabine is doing so well. At physio yesterday there is a 3 year old boy having treatment and the therapists have been trying to make him walk with his walking frame (its such a tiny frame) he cried and screamed, Sabine went over to him and chatted for a few minutes then handed him the frame and said 'here take it' and he did! The therapists were so pleased even though Sabine didn't know why it was so hard. This isn't an easy environment to be in for anyone and Sabine is really taking it in her stride.
Tomorrow there isn't any physiotherapy so we have arranged to go to The Taj Mahal, Sabine is so excited because she has been learning all about it at school.

2 comments:

Anonymous said...

Hi Claire, Sabine and Valia,

enjoy your trip to Taj Mahal - how wonderful - 3 generations of women visiting and admiring this testament to love and courage - so much like your journey together.

Go Beanie!! And great news (said with contained excitement) on progress!

Unknown said...

Hi Claire
Its great to hear that you are going so well. I can barely wait to hear how the trip to the Taj went.
Tell Sabine to keep up the good work and ask her to give a big kiss to nana for me.